| Title |
Genetic secrets : protecting privacy and confidentiality in the genetic era / edited by Mark A. Rothstein. |
| OCLC |
37281664 |
| ISBN |
0300072511 (cloth ; alk. paper) |
|
9780300072518 (cloth ; alk. paper) |
|
0300080638 |
|
9780300080636 |
| Publisher |
New Haven : Yale University Press, [1997] |
|
©1997 |
| Description |
xvi, 511 pages : illustrations ; 24 cm |
| LC Subject heading/s |
Human Genome Project.
|
|
Medical genetics -- Moral and ethical aspects.
|
|
Medical genetics -- Law and legislation.
|
|
Medical records -- Law and legislation.
|
|
Privacy, Right of.
|
|
Confidential communications -- Physicians.
|
|
Medical records -- Access control.
|
|
Confidential communications.
|
|
Genetic screening.
|
|
Medical genetics.
|
|
Medical records.
|
Medical
Subject heading/s |
Confidentiality. (DNLM)D003219
|
|
Genetic Testing. (DNLM)D005820
|
|
Genetics, Medical. (DNLM)D005826
|
|
Medical Records. (DNLM)D008499
|
|
Registries. (DNLM)D012042
|
Other
Subject heading/s |
medical records. (CStmoGRI)aat300027189
|
|
Medical records. (OCoLC)fst01014546
|
|
Medical genetics. (OCoLC)fst01014133
|
|
Genetic screening. (OCoLC)fst00940094
|
|
Confidential communications. (OCoLC)fst00874701
|
|
Confidential communications -- Physicians.
(OCoLC)fst00874720
|
|
Medical genetics -- Law and legislation. (OCoLC)fst01014136
|
|
Medical genetics -- Moral and ethical aspects.
(OCoLC)fst01014139
|
|
Medical records -- Access control.
(OCoLC)fst01014549
|
|
Medical records -- Law and legislation. (OCoLC)fst01014561
|
|
Privacy, Right of. (OCoLC)fst01077444
|
|
Humangenetik. (DE-588)4072653-8
|
|
Privatsphäre. (DE-588)4123980-5
|
|
Rechtsschutz. (DE-588)4048835-4
|
|
Medical genetics -- Moral and ethical aspects.
|
|
Medical genetics -- Law and legislation.
|
|
Privacy, Right of.
|
|
Confidential communications -- Physicians.
|
|
Medical records -- Access control.
|
|
Génétique médicale -- Droit.
|
|
Dossiers médicaux -- Accès -- Contrôle.
|
|
Droit à la vie privée.
|
|
Médecine -- Secret professionnel.
|
|
Bioéthique -- Droit.
|
|
Humangenetik.
|
|
Privatsphäre.
|
|
Rechtsschutz.
|
Other
Genre heading/s |
Statutes and codes. (OCoLC)fst01774314
|
|
Session laws. (OCoLC)fst01774308
|
MeSH
Genre heading/s |
Legislation. (DNLM)D020485
|
Other
Genre heading/s |
statutes. (CStmoGRI)aatgf300027891
|
|
law codes. (CStmoGRI)aatgf300379879
|
|
Statutes and codes.
|
|
Session laws.
|
|
Lois et codes. (CaQQLa)RVMGF-000001101
|
| Bibliography |
Includes bibliographical references and index. |
| Contents |
I. Background. Genes, genomes, and society / Leroy Hood and Lee Rowen -- Genetic privacy : emerging concepts and values / Anita L. Allen -- Genetic exceptionalism and "future diaries" : is genetic information different from other medical information? / Thomas H. Murray. II. The health care setting. Genetic privacy in the patient-physician relationship / David Orentlicher -- A clinical geneticist perspective of the patient-physician relationship / Eugene Pergament -- Privacy in genetic counseling / Barbara Bowles Biesecker -- Informed consent and genetic research / Ellen Wright Clayton -- Genetic screening from a public health perspective : some lessons from the HIV experience / Scott Burris and Lawrence O. Gostin. III. The effect of new technology. Confidentiality, collective resources, and commercial genomics / Robert Mullan Cook-Deegan -- Biomarkers--scientific advances and societal implications / Paul W. Brandt-Rauf and Sherry I. Brandt-Rauf -- Environmental population screening / Jonathan M. Samet and Linda A. Bailey -- Are developments in forensic applications of DNA technology consistent with privacy protections? / Randall S. Murch and Bruce Budowle -- DNA data banks / Jean E. McEwen. |
|
IV. Nonmedical uses of genetic information. Gen-etiquette : genetic information, family relationships, and adoption / Lori B. Andrews -- The law of medical and genetic privacy in the workplace / Mark A. Rothstein -- The implications of genetic testing for health and life insurance / Nancy E. Kass -- Genetic information in schools / Laura F. Rothstein -- Courts and the challenges of adjudicating genetic testing's secrets / Franklin M. Zweig, Joseph T. Walsh, and Daniel M. Freeman. V. Ethics and law in the United States and abroad. Justice and genetics : privacy protection and the moral basis of public policy / Madison Powers -- Laws to regulate the use of genetic information / Philip R. Reilly -- European data protection law and medical privacy / Paul M. Schwartz -- International and comparative concepts of privacy / Sonia Le Bris and Bartha Maria Knoppers. VI. Recommendations. Genetic secrets : a policy framework / Mark A. Rothstein. |
| Summary |
The dramatic explosion of information brought about by recent advances in genetic research brings welcome scientific knowledge. Yet this new knowledge also raises complex and troubling issues concerning privacy and confidentiality. This thought-provoking book is the first comprehensive exploration of these ethical, legal, and social issues. Distinguished experts in law, medicine, bioethics, public health, science policy, clinical genetics, philosophy, and other fields consider the many contexts in which issues of genetic privacy arise - from research and clinical settings to workplaces, insurance offices, schools, and the courts. |
